The Official SMA Awareness Ribbon pin was created at the time of Madison Rose Reed's baptism on June 22, 1997.
Leftover ribbon and roses from her gown were formed into the pins worn by family members that day.
The cream/ivory color ribbon represents the innocence and purity that our children possess. The rose stands
for strength and courage: a quality that all with SMA and those affected by SMA possess. The ribbon and
rose pin became a symbol for SMA Awareness in June of 1998.
To the right is Madison at 4 months of age at her Baptism with her godparents, Aunt Fran and Uncle Ed.
Aunt Fran is wearing an Official SMA Awareness Ribbon Pin made from a rose and some ribbon from Madison's