Welcome

Miracle for Madison & Friends (MFM&F) is dedicated to raising money to help OSU researchers find a cure for Spinal Muscular Atrophy (SMA). This website is packed with information on SMA, including ways to help find a cure, updates on research, merchandise to show your support as well as pictures and stories about Madison and her many friends.






Announcements






Two internet friends meet at Walt Disney World

Madison Reed and Hannah Price have been friends on the internet for many years. They were finally able to meet in person and spent a wonderful day together with other princesses at Epcot in Walt Disney World on May 14, 2019. It is with great sadness we announce Hannah earned her angel wings on April 26, 2021.

In loving memory of Hannah Nicole Price October 27, 1996 - April 26, 2021

Forever 24 years old






Ohio girl with Spinal Muscular Atrophy plays a crucial role in new FDA-approved therapy

Madison recently was featured in a local news segment about her role in inspiring research toward a cure for Spinal Muscular Atrophy as well as her family's journey with SMA.

Click on the picture or link below to see the video and accompanying article.

Ohio girl with Spinal Muscular Atrophy plays a crucial role in new FDA-approved therapy






FDA Approves First Gene Therapy Treatment for SMA Developed at the Abigail Wexner Research Institute at Nationwide Children’s Hospital

COLUMBUS, Ohio – Today, the Abigail Wexner Research Institute at Nationwide Children’s Hospital praised the Food and Drug Administration (FDA) for its approval of Zolgensma® for spinal muscular atrophy (SMA) following decades of research in its Center for Gene Therapy to help patients with neuromuscular diseases

Click on the link below to read the entire announcement.

FDA Approves First Gene Therapy Treatment for SMA Developed at the Abigail Wexner Research Institute at Nationwide Children’s Hospital






Our miracle did it! Today she received her first loading dose of Spinraza, the new FDA approved drug treatment for Spinal Muscular Atrophy. When you BELIEVE - Miracles Happen!

Click on the link below to see a video of Madison's progress after her first loading dose of Spinraza.

Video of Madison After First Spinraza Loading Dose






Madison after her first four loading doses of Spinraza!

Madison who has SMA Type 1 has received eleven doses of Spinraza as of July 25, 2019. The picture collage below shows her after each of her four loading doses. Click on the picture or link below to read an article about Madison's status after her third loading dose of Spinraza.

Hope for Madison: New drug to treat SMA shows promise






FDA Approves First Drug for Spinal Muscular Atrophy

The U.S. Food and Drug Administration today approved Spinraza (nusinersen), the first drug approved to treat children and adults with spinal muscular atrophy (SMA), a rare and often fatal genetic disease affecting muscle strength and movement. Spinraza is an injection administered into the fluid surrounding the spinal cord.

Click on thelink below to read the entire announcement.

FDA Approves First Drug for Spinal Muscular Atrophy






Follow Our Blog

Please scroll to the bottom of the blog and submit the form located there if you would like to receive updates to our blog via e-mail.